Mavrik: Hypoplastic Left Heart Syndrome
鈥淚f it wasn鈥檛 for that fighting spirit, he might not be alive today. He鈥檚 wise beyond his years, and inspires others. His dream is to play baseball. His spirit and inner strength keep him going every day.鈥
鈥 Kim, Mother
Few people live up to their name more than Mavrik. 鈥淚ndependent, strong-willed, no stopping him 鈥 that鈥檚 the definition of a maverick, and defines my son,鈥 says Mavrik鈥檚 mom, Kim. 鈥淚f it wasn鈥檛 for that fighting spirit, he might not be alive today.鈥
Mavrik has faced many battles for a 6-year-old, including seven open-heart surgeries, a stroke and weeks in the hospital. Through it all he remains a pint-sized dynamo who doesn鈥檛 let anything stand in the way of his true passion 鈥 baseball.
Mavrik鈥檚 dream came true last year when he threw out the first ball of a Phillies game. His time in Buddy Ball and Little League prepared him well for the big moment.
鈥淢av plays every position with enthusiasm,鈥 Kim says. 鈥淗e will play in all weather at any time. He just loves baseball, and his team loves him. They call him when he鈥檚 sick, and they have a special cheer for him. He seems to charm people wherever he goes.鈥
Mavrik鈥檚 health problems began before he was born. Although Kim was delighted to be pregnant at 39, her joy was short-lived when an ultrasound revealed a serious heart defect in the developing child. The diagnosis was hypoplastic left heart syndrome (HLHS), a condition in which the structures of the left side of the heart are underdeveloped and unable to pump blood adequately to the body. At 26 weeks gestation, Kim had her first consult with 91制片厂在线看 pediatric cardiologist Abdul Bhat, MD.
鈥淗e gave us three scenarios for the delivery,鈥 Kim says. 鈥淲e chose the Norwood three-stage procedure to correct the defect.鈥 Mavrik was born at Lankenau Hospital and transported immediately to the 91制片厂在线看 Cardiac Center. His first surgery was done at one week and his second at 5 months of age. Mavrik developed complications that included a stroke but, despite setbacks, underwent the third stage procedure and did well.
Mavrik needed a peripherally inserted central catheter (PICC) and physical, occupational and speech therapy after the stroke. Yet given all that Mavrik has been through, he has a giant personality and a heart to match. 鈥淓veryone is attracted to him, he has great compassion,鈥 Kim adds. 鈥淗e鈥檚 wise beyond his years, and inspires others. His dream is to play baseball. His spirit and inner strength keep him going every day.鈥